The ethical minefield of crowdfunding for medicine
In an historical crowdsourcing effort, more than 23,000 people put together more than $2.2 million in just four short days to help a little girl that very few of them even knew, so she might have a decent quality of life. Now her family can finally afford one of the world’s most expensive medicines ever, it’s perhaps now appropriate to reflect on how we got here. At first, I assumed it was just another scam. Another email and WhatsApp message trying to raise money for a family in a difficult situation that nobody really knows, whose situation nobody could really verify, looking for a medical therapy or financial solution unlikely to actually help resolve their situation.